awarness

Do you remember after school specials or the this is your brain on drugs commercials?   I'm sure if you were born at some point in the 70's or 80's you know what I am talking about.  they were silly we still make fun of them but they were effective.  Not because they were groundbreaking but because they opened up dialogue.  They put a human spin on very real but pushed under the rug issues.

Same with HIV and AIDS. Molly Ringwald did a TV movie, Tom Hanks did Philadelphia, and Stone died on General Hospital.  Actors wore red ribbons  and the world changed because of awareness.  I know this disease doesnt have a cure yet but people are living long, full lives because people talked about it, people demanded research, and progress was made.

I was almost 4 years old when my Grandpa passed away.  He had cancer. when I was 4 there wasn't a lot to do. There wasn't early detection like there is now and my Grandpa had no chance.  That isnt the case anymore. Don't misunderstand I know people don't always survive, I know the treatments are terrible but I also know that innovation is happening all the time. I know that I buy pink m&m's. I put money in the cancer research boxes and there are break throughs. I know survivors.

This is all i want.  i want my son to have a chance no matter how slim.  i want ribbons and stand up to Duchenne primetime TV specials.   Why is it that a lot of trained Drs and nurses do not know the difference between MD and MS? Why is the MDA telethon regulated to a few hours on labor day weekend on 1 network.  Ask yourself how this disease can afflict 1 in 3600 boys and you didnt know a thing about it until my story.  I dont mean that bad i was pretty clueless myself.

My child is battling this disease w/o a tool.  There is research that looks promising. This is my child that is not enough. I am asking you today to help me. To raise your voice to demand answers.  Talk to someone about this disease.  Tell them about my child and how his future  is threatened.  Awareness leads to money and research. 

i am not asking anyone for money i just want people to talk about this.  Children cannot advocate for themselves. They can't donate money, and they are defenseless.  Don't talk about this because of me or my family, talk about it so this isn't your story or your grandchilds story.  This doesn't just happen to other people this  happens to anyone.