Break

We are leaving for Disney World Saturday morning.  I won't be posting anything until after we get back.  We all need this so much I am so glad Shelby and i decided to spend this money now. i am going to try my hardest to put DMD on the back burner.

The hardest thing about this disease right now is living in the moment while living in the shadow of tomorrow.  Every day is a struggle to keep my head in today. To not ache when he smiles but to savor it. I really have a hard time articulating this. It is so hard to put into words and so hard to understand if you haven't walked this walk.  It is very hard to feel anything else but sorrow yet we have to for him.

Disney World  is something all 5 of us love. I mean crazy Disney people love. Like if I would let him my husband would make us all matching shirts.  This year I think Disney is an escape. I think sometimes in life you have to just step away. We have been living DMD nonstop since December 15th. We are tired, wounded,and stressed out. So even though i don't like going when it's hot or crowded this year we are. We are going to relax, enjoy, and laugh.  DMD can wait a week.