Celebrate

Every day is a struggle to find something  positive. My life, my families life isn't what I planned or hoped it would be.  The dreams and plans we made as we started and then grew our family all had to change seemingly out of nowhere. There might have been little clues here and there but honestly I never saw muscular dystrophy coming.

There is a freedom in living life on the edge of tragic. A way of seeing what and who really matter. I constantly have to make an effort to step back and find something to celebrate. A reason to smile.  I can't fake happy so I have to find happy.

 Last night Robbie stood at the enterance to a restaurant with a couple of firefighters he hadn't met until that day and he talked about his MDA camper expeirence and urged people to buy a shamrock and help.  They raised over 100.00.  Last year in the entire month of March they earned 92.00.  Robbie helped to make a difference last night.

I know it doesn't sound like a lot of money but I don't care it's millions to our family.  Last night this 7 year old boy with all the odds stacked against him made a difference. He put a face on muscular dystrophy.  He made families and co workers out for a drink stop and buy a shamrock. These weren't people that loved him these were strangers many of whom probably didn't even know about muscular dystrophy. 

I am proud of him.  So proud in makes me cry. Today I am celebrating. Last night my kid that works harder then the rest of us did something amazing. He might never raide a 2 wheel bike,  he may never run a marathon, or  run up a flight of stairs, but Robbie is my hero.  

I hate that he struggles with muscular dystrophy.  I hate that there isn't a cure. I hate that all my kids have to live with the weight of this disease. Damn am I lucky i get to be the one he calls mom.