We have officially known that Robbie is suffering from Duchenne Muscular dystrophy for 10 months. i can't believe we have made it this far, i really didn't think i could live through the news. I thought for sure my heart was to broken the world would end and that would be that.
I have decided to give my self a little lightness as we head into the holiday that will forever be bittersweet for me. The next to months I am going to focus on the happy. I am going to try and post everyday about the blessings in my life. Don't worry will still share angst when I have it but I think surviving the holidays and stuff is going to take some work for me and my kids are used to me making it special so I am going to do that.
In times of sadness there is almost always someone that takes your hand and pulls you through. so many people have done that for my family it's hard for me to start but i think I have to start at the beginning.
On December 13th 2011, we got a call that was going to break the hearts of a lot of people. We needed a family member and we needed them quick. right away all of our parents starting trying to get to us. it didn't matter how much it cost someone was going to get here. In the end it was my mom that came and 3 parents that had to stay behind. I can't imagine what it was like for the 4 of them.
I mean your kids call and you know their lives are about to be destroyed and you can't fix it. Okay i guess i can imagine that but it had to be hard.
When the news came we were all hoping wouldn't come we were lucky enough to spend 2 weeks w/our families. Instantly they stepped up. Nothing that happened before then mattered anymore. I let go of some grudges well really we all did.
we went so long being alone, and we were pretty good at it, but we couldn't do it anymore. So our family fed us, they cried w/ us, they made us laugh. Some of them bought extravagant gifts,some said come to my house and wrap presents, some were just there. We are loved.
if there is a good thing to take from all this its that it opened me up to give love in places i maybe should have years ago. I am so lucky to have love to be able to love. i feel like my family hasn't grown but it's so much bigger.
So today I am blessed to be part of the Jones/McGregor/Bates family. I love you all and I hope that everyday you know how much comfort your support gives us. How the days when it gets too much we know you are there. I know all of you are hurt and devastated like we are but you manage to be so strong for us. i just want to say...
Thank you!
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