It doesn't matter what this disease takes from our family because we will always have the little things. there will always be a hug, a laugh to share, a good meal. It is so easy to get wrapped up in the unfairness of this disease. To feel only pain but life just isn't that way. We have to live even when sometimes it hurts to do so.
It is a constant struggle finding peace and happiness in the face of the hell our life has become. It is also a gift, allowing us to see the beauty of the little things. You can't take a walk through the mall for granted when at some point your child may struggle to do so. A hug because you say, yes to going to gamestop is a lot more meaningful then it was before.
Saturday we made homemade waffles, saw a movie, hit the mall to spend Kelsey's birthday money, ran by parents, watched the Tigers and the Reds win their games, and spent Sunday in our Pj's eating nachos and watching more baseball. it was simple but it was amazing. We laughed and screamed, hugged and kissed, and we were just us. We weren't 5 people living through devastation but a family, a happy family. For a brief second i forgot I was angry and said thank you, God, thank you for this amazing family.
DMD isn't stronger then the love this family has. We wont let this take us down. No matter what the future holds we will have weekends like this. we will laugh even when it hurts. We will hope and we will pray that this is moment a cure is found, that this is the generation of survivors. We will hold on to this boy and be his strength when he needs us to be and we will let him fight his battles when he needs too. we won't let him give up, we we help him find his happy and musuclar dystrophy will not define us or him.
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