what can i do

Robbie hugs his bus driver on Friday afternoons. If you ask him why he says"I will miss her I wont see her for 2 days." Every morning no matter how grumpy we both our he says he loves me and hugs me. If he knows he is related to someone he hugs them. It doesn't matter if he has never seen you if you are is family you are getting a hug and probably a kiss.

He loves fruit and isn't a fan of candy. He adores ice cream and cheese cake. he tell his sister she needs to like vegetables because they are "good for you." If I cook a dinner he likes he will tell me about 20 times how much he likes it. He loves to help in the kitchen although he sometimes thinks sprinkling cinnamon into scalloped potatoes is a great plan.

He sees magic at Disney world. He has an active imagination and he is always willing to suspend beleif to fully experience something. He loves cars and trucks and loves to take things apart.

Robbie has duchennes muscular dystrophy and it isn't fair. I always thought I was one of the lucky ones.A parent that could say well no matter what else happens I have 3 healthy kids. To think my beautiful boy isn't healthy is so earth shattering.

I spend so much time trying to find the why. I don't think it would matter if I got an answer. There could be no plan I would think could justify this. So I have to move on from the why. i have been thinking a lot about what I can do right now, what is my job here and stuff like that.

1 in 3600 boys is a pretty huge number if you think about it. I had no clue this disease was so prevalent. Many people have told me since the diagnosis that they didn't even know what it was for sure. That is where I think I have found my cause. I want to raise awareness. i think awareness leads to medical developments. 1 in 3600 boys is too much, way too much.

I am angry that my kid is sick. So angry that 1 3600 boys are sick and that I barely knew about this disease. That has to change. I want to see DMD ribbons at the oscars. DMD is killing children and it has to be stopped.