We raise nearly 3000 for the MDA this year. The total from the Atlanta Muscle walk was around 155,000.00. Thank you everyone that supported our team and all the other teams. Robbie held my hand and walked this years Muscle Walk, Kelsey and her friends carried our team banner.Shelby pushed Madison n her stroller and I was surround by some of my closest friends. This was a beautiful and strengthening event for me. Shelby and i realized we part of a small but determined community now.
Robbie's Team Awesome is not ending here. I am so ready to fight this disease. I am so excited about the exon skipping trials I have read about. i thought I couldn't fight but the truth is I just have a different fight to fight. People need to put faces on this disease. They need to understand the randomness of this disease. We need to stop this disease. No family deserves this feeling grief Shelby and are I working so hard to overcome.My baby wants to be a cowboy this week and he deserves the chance to do that. All of our children deserve a chance to grow up to reach for the stars.
I am going to hope because Robbie needs me too. I am going to pray even though I am still so angry w/ God. I am going to be strong when my family needs me to be and I am going to fall apart when I need too. I am going to demand competent medical care. i am going to try to focus on today and hope for a different tomorrow. I am going to me involved in saving my son. When he was that NICU and I had to sleep in that closet on a cot I didn't back down and I won't now.
I am going to cling to the love and support from my family and friends. I am going to be thankful for the people we count on. I am going to forget past hurt and differences and be grateful for the present. I am going to call my Mom when I need someone tell me I am still normal. I will call my Dad when I need someone to tell me to think positive. I am going to stop referring to our families as his and mine and refer to them as ours. I am going to go out w/ the girls and drink a few when I need it. I am going to laugh and love. I am going to cry and yell. i am going to smile everyday.
I didn't ask for this life and I am pissed it is the one I have but I am determined to make it mean something. I am going to show Robbie that we are fighting for him. I am going to help him fight. i am going to help my girls fight. My beautiful girls that love their brother so much. My sweet Kelsey that just when I think she isn't getting it she does something amazing. I love to watch the three of them in the backyard exploring, the girls naturally adjust to Robbies strengths, they are such good sisters.
Please join my fight. it doesn't have to be money. tell people about Robbie. Tell them how important those clovers are. Awareness and research that is what have right now and that is what I am fighting for. Robbie deserves the chance to be a cowboy, all kids o.
Hi Nicole, my name is DeLynn and I am Nicole Woods mama! I just finished reading every one of your posts and I wanted to just say hello to you. I am a mother who lost my son .... a long time ago now ... But I feel all those things you talk about - I've already been through them, experienced them, and always say to others that no parent should ever have to say goodbye to their child. And anyone who has not gone through that will never, ever know how you really feel. Life is hard, but continues on, and all these years later I still have my memories as if it were just yesterday. I'm never shy about talking about him, even if others felt uncomfortable. He was my son. He was my Nicole's sweet brother. You and your family will inspire others, even though you may not know it...I am glad to know you through Nicole and will keep you in my prayers as you continue down your path with Robbie. You are very strong, mothers are when protecting their children, and you will fight for him until you can't. God Bless your family. Love, DeLynn
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